Our little girl Aalayah each and every day u inspire us with every little thing you do no matter what you smile threw each day 💙💚 Williams syndrome affects 1 in 10.000 births it’s a rare genetic disorder caused by a deletion on the long arm of chromosome 7 which is a random genetic mutation and is not inherited and is present at birth even tho this was not picked up until September 2018 with aalayah. Aalayahs pulmonary stenosis was found at 6 weeks old we had regular heart scans at Wigan up until we had one at alder hey the women who seen us there picked up straight away that aalayah could possibly have Williams syndrome and sent us straight of for her genetics done after her scan was the longest wait of my life for the results and then to find out by a letter was another hard one to take in but were so grateful we had Christopher to pick me up each day when it got hard for me I use to sit and imagine the worst things possible would happen how would she cope going to school would other kids bully her would she even be able go to mainstream school but here she is at main stream school loving every day of it yes I've been told she may not be able to continue in mainstream school but what does that matter well at first it did to me I want aalayah to have the most normal life she can because she is just a normal child after all I don't look at her as different because she's not. Not one person with Williams syndrome is the same each and every one of them is unique and special I say special because that's what they are aalayah takes each and every day with a smile on her face nothing stops her snd nothing ever will #shareyourheart
